Home > Family Services > Family Services Office Hours – 11.03.11

Family Services Office Hours – 11.03.11

Office Hours easily connects families to a wide variety of autism-related resources, including Family Services Tool Kits, and the Autism Speaks Resource Guide, an online national database of autism providers and resources searchable by state and zip code.

Family Services Office Hours is designed to quickly provide access to resources that are available and free to the entire autism community.

The Office Hours sessions are staffed by ART coordinators who are specially trained to connect families affected by autism to resources.

Welcome to Office Hours! Thank you for joining us today. The Family Services team is here ready to answer your questions!
Comment From Francene

My son was recently diagnosed with Aspergers. How can I get him help and help our family cope, too? I feel like I have no one to talk to.

Hi Francene! Have you checked out our Asperger Syndrome/High-Functioning Autism Tool Kit? It is a free kit designed to help families understand more and cope after the diagnosis. It will help walk you through the steps following the diagnosis. http://www.autismspeaks.org/family-services/tool-kits/asperger-syndrome-and-high-functioning-autism-tool-kit
You can order a personalized copy for free by calling our Autism Response Team at 888-AUTISM2.
We have tons of other helpful resources on the Family Services page of our website! www.autismspeaks.org/family-services
Comment From bernice

High functioning 8 yr old son os being physically abudive towards me and no one else…i am the one with him the most. Any advise or resources. Thanks

HI Bernice I am sorry to hear about your situation with your son. I would suggest you have him evaluated by a professional who understand Aspergers Syndrome. The ATN has developed a resource called the Medication decision Aid Tool Kit that may be helpful.
Comment From Lisa Gallegos

I was wondering if you have any homeless supportive services? We are being forced out of our home and have 18 days to come up with deposit money for the new place, but we have no where else to turn if we don’t get that money.

Hi Lisa. I’m sorry to hear about your situation. We have an Autism Cares grant program that helps families experiencing crises such as yours: http://www.autismcares.org/
We also have a page on our website for Families in Need:http://www.autismspeaks.org/family-services/resource-library/families-need
AutismCares Provides Grants for Individuals with Autism Spectrum Disorders During Times of Crisis or Unplanned Hardships. It is for families who have experienced a catastrophic life event in the past 90 days such as loss of a home, a job, death in the family, natural disaster, etc.
Hi Melissa, thanks for your question. Its very important that you work with your Pediatrician or other medical professional; a Developmental Predication or a Neurologist, so they can be informed and active members of your team.
Comment From Melissa

My daughter will be 3 in December and recieved an educational diagnosis of Autism in July. How important is a medical diagnosis at this time? She has increased behaviors when in strange situations so unless it would be extremely beneficial I would like to avoid situations that cause her extreme stress.

hi Melissa- sorry I answered your question before I published it.
Melissa- there is a great book I would recommend by Dr Ricki Robinson called Autism Solutions: How to create a healthy and meaningful Life for your child with
Comment From jennifer

I have two sons that have both just been diagnosised with ASD. Where can i find a book or something to give to the grandparents to help them understand what this is?

Hi Jennifer! We recently released a Grandparent Support Tool Kit called A Grandparent’s Guide to Autism.http://www.autismspeaks.org/sites/default/files/a_grandparents_guide_to_autism2.pdf. We also recently did a Community Connections piece celebrating Grandparents.http://www.autismspeaks.org/family-services/community-connections/celebrating-grandparents.
We come out with a Community Connections newsletter once a month that covers important topics for families. Sign up here!http://events.autismspeaks.org/site/c.jqLTI1OxGlF/b.5766483/k.3E56/Community_Connections_Sign_Up/apps/ka/ct/contactus.asp?c=jqLTI1OxGlF&b=5766483&en=deJCIJNpEcLEKKNuE9KAKPMzGhIIJPNmG6KMK2PEJsE
Comment From jennifer

My ot was talking to me about insurance for kids with ASD. do you know anything about this?

Hi Jennifer. Advocacy for insurance coverage for autism services is a huge part of the Autism Speaks mission. 29 states have mandated autism insurance coverage in recent years. Visit our advocacy page www.autismvotes.org for information about insurance in your state.
We also plan to release an Advocacy Tool Kit in the next month or so, so keep your eyes out for that!
Comment From Eva

any advice for a three year old who will not go to sleep at a good hour at night?

HI Eva
Family services just recently published information on Autism and Sleep Disorders.
In addition, the Autism Treatment Network has published information on Sleep disorders and Autism.The link to their page is below.
Comment From Guest

What do you do when you have 2 kids dx with ASD and live in a state covered under the mandate but our insurance has a $15000 deductible with $80 copays and ineligible for medicaid and cms bc of income. EI is scaping bottom of barrell to give services… what other options are there bc we are underinsured to get supplemental services for my babies?

Hi Guest – I suggest you check our our Familes In Need page in our Resource Library http://www.autismspeaks.org/family-services/resource-library/families-need
Early Intervention services “should ” be based on the child’s needs for services.
I would recommend getting assessments to help define your children’s needs.
You may also want to visit our Resource Guide and look up state information, or contact other Local Autism Organizations who may be better able to point you in the right direction in your state.www.autismspeaks.org/resource-guide
There is a state information category for EI age, Preschool Age, School age and Adults.
Comment From Guest

Florida has the most pathetic early intervention program and its reprehensible that they can even call themselves early intervention. I have had to pay out of pocket for independent evals and still receive minimal services (1hr per wk of a primary service provider) and 1hr every 6mon of face to face with secondary “consulting” provider. Its a joke.

hello- I’ve heard stories about many states who offer the minimum interventions. Have you tried working with an advocate. I realize they can be expensive, but sometimes it can make a huge difference in accessing more services.
You can find advocates in our Resource Guide atwww.autismspeaks.org/resource-guide.
I would also recommend a wonderful book called, The Everyday Advocate by Areva Martin.
You may also want to read our Community Connections on Advocacy at http://www.autismspeaks.org/family-services/community-connections/advocacy-can-make-all-difference
A law firm put together a great guide to legal information for families of children with autism, which you can see at that site as well.
Comment From Guest

I have contacted the state office in tallahasse all ready. My kids passed their BDI-2 assessment with flying colors and they refused to give diff eval. They are only giving services bc of their dx

Sounds like you are doing a great job of advocating! Keep up the good work.
I would also encourage you to sign -up for autismvotes eNewsletter. Our government relations team works with state and federal officials on increasing services for individuals with autism.
Our next Community Connections will be published on November17th, focusing on Safety and Autism, we will launch updates to the Autism Safety project WebPages and offer a new Safety in the Home Workbook and Video, this very practical resource was developed for families by Ohio State University faculty and funded by a Family Serves Community Grants.
http://events.autismspeaks.org/site/c.jqLTI1OxGlF/b.5766483/k.3E56/Community_Connections_Sign_Up/apps/ka/ct/contactus.asp?c=jqLTI1OxGlF&b=5766483&en=lgIJKONAJbLEKUNBI9IHLZMILjIMLVOuH8JQI8PMLuEWe will continue the theme of safety in our topic of the week discussions giving families the opportunity to share their successes stories with the community.
http://blog.autismspeaks.org/2011/11/01/totw-traffic-safety/In addition, we have 2 LIVE chats scheduled this month, one with expert Dennis Debault on How to Prepare for an Autism Emergency and the other with George Braddock who will chat about his work on Home Safety. We will promote both these live chats on Facebook, as we get closer to scheduled dates
Family Services completed the launch of the Family Support Tool Kits – targeted for the parents, siblings, grandparents, and friends of the child with autism.
Comment From Guest

Joined on autismvotes on fb a couple mos ago. Will check out newsletter as well

Thank you all for joining us today! As always, feel free to call our Autism Response Team at 888-AUTISM2 or email us atfamilyservices@autismspeaks.org with any other questions you may have.
See you back here next week!!
  1. Denice
    November 3, 2011 at 4:09 pm

    My heart is breaking. Just got off the phone with my sister who has children with autism. She just got back from the neurologist. Basically the doctor spent 1.5 hours telling her all the things that she has done wrong as a mother for her child. My sister is the best mom ever! There is not a day that goes by that her children don’t feel loved. They are the happiest, well taken care of children I know. She is very involved in getting her children the help they need. All she was wanting is a note from the doctor saying that her 5 year old needs speech therapy. So she can put her in a certain speech class that she knows can help her daughter. Instead they wanted her to get a genetic test done. My sister doesn’t want to do that because she already knows it is genetic. It is not going to change one thing. The doctors (more than one) said many hurtful things. I thought we were much further along in that socially in understanding autism. Maybe I am the one naive. I hold the up most respect for my sister and the care she has provided for her children. No government agency can ever meet her standard of care. I am highly frustrated and I feel for my sister. She was sobbing……….

  2. Amber
    November 9, 2011 at 8:35 pm

    My husband and I are talking about starting a family. He has a sister with severe autism. I’m really freaked out that we have a higher chance of having a child with autism. Does anyone know if this is the case?
    Any help would be greatly appreciated
    ~ Amber

  3. Milagros Huaman
    December 11, 2011 at 3:56 pm

    Estimados amigos de Autism Speaks,
    Somos de la asociacion civil sin fines de lucro, “Soy autista, y que?” y trabajamos en el Peru por el tema de la inclusion educativa, social y laboral para las personas con habilidades diferentes. Les invitamos a conocernos visitandonos en nuestra pagina de Facebook: http://www.facebook.com/Soy.autista.y.que.
    Saludos cordiales,
    Milagros Huaman

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