Home > Awareness, Stages > What makes a community a good place to live?

What makes a community a good place to live?

Simple conversation often provides our organization with valuable insight into the lives of our families, their triumphs, struggles, issues impacting their lives and helps us understand how to better serve the autism community’s needs. That’s why we took the conversation one step forward and conducted Autism Speaks’ very first online “Community Survey.” Designed as a “conversation starter,” the survey explored why their community is, or is not, a good place to live if you have autism. We asked if they were happy with the availability of services in their community, and specifically explored access to medical and clinical care including diagnosis, therapeutic services, educational services in public and private schools, inclusive or adaptive recreation and respite for families and caregivers.

We wanted to hear from all corners of the country, from people with autism, their parents, siblings, clinicians, therapists and anyone else with perspective on this issue — and the response could not have been better. Almost 1500 people engaged in the survey which was open for a three week period and more than 800 members of the autism community in the 48 contiguous states and the District of Columbia completed the survey. Thanks to everyone’s input, we came away with a wealth of opinions, personal experiences and information that has allowed us to identify the best communities to live in if you have autism. More importantly we heard what characteristics are valued by our families that make a community livable. We encourage everyone take a look at the rankings, which were just announced today, and see if your community made the list. We also want to know your thoughts on the issues presented in the survey to keep this vital conversation moving forward and in the public spotlight.  To view the results of the Autism Speaks Community Survey, please click here.

  1. Barbara
    April 1, 2011 at 9:14 am

    I have found that East hartford, CT has a great school for children with autism. I had to fight to find out about them but now in the Greatest School my son is doing awesome. GO WOODLAND SCHOOL!!!!!!!!

  2. Bonnie Singer
    April 1, 2011 at 3:48 pm

    One that modifies activities to include a kid with special needs and has parent support groups.
    School districts that provide appropriate services and teach tolerance.

  3. April 3, 2011 at 12:40 pm

    Great survey! We enjoy that Autism Speaks asks the relevant, on-the-mark questions like ‘What is the Best Place to Live if You have Autism.’ Shared results link on our ‘EnjoyHi5Autism’ sites and Facebook pages Kbj Cosse’ and http://www.facebook.com/pages/Enjoying-the-hi-5s-of-autism-a-family-experience

  4. Sajjad Shafi
    April 8, 2011 at 8:34 am

    Any findings for Canadian cities

  5. lynn griffiths
    April 8, 2011 at 9:39 am

    my town isn’t the greatest to live when it comes to autism services, but the advice i get just 25 miles away is very helpful. the best doctors are in orlando fl, but we live in sanford florida due to my husband’s job. i would feel calmer closer to the best hospitals in orlando or even in casselberry florida

  6. April 8, 2011 at 10:15 am

    Los Angeles County I feel lacks in every aspect when it comes to educating and finding services for Special Needs Children. Although my son is a high functioning autistic child, it is near impossible to find day time care for him while I am working. I have tried Harbor Regional Center in Torrance, and they did not even get back to me. I did find one exceptional non-profit educational care facility in Torrance. Switzer Learning Center appears to be the best in all of Southern California. It does however come with a price. As does any thing of value. Also their summer program is limited to only the summer program weeks that the school district will pay for. That is why I am raising money thru “Ride for Special Kids” to help support Switzer Learning Center and supply a before/after and full summer school program. Go look up our page or Switzer Learning Center in Torrance CA.

  7. April 8, 2011 at 10:17 am

    Although our family has relocated to another state to get more appropriate programs and services for our autistic boys, I find it interesting how programs and services for such a strange and unique disorder could be generalized as good or bad by geographic location. I can imagine that in every area of the country that was rated poor in the survey has just an equal amount of individuals receiving proper programs and support services in their community. I am sure the opposite is true of those locations listed as good. Overall, I agree with the premise that, in general, there certainly are not enough available and adequate services for individuals of all ages across the spectrum in this country. It is my hope that providers will grow commensurate to the growing statistics of the disorder.

  8. ann copley
    April 8, 2011 at 10:49 am

    My niece is 19 and has Autism. My sister, her mother, lives in a rural area of Tennessee and there is no facilities and no support group. My sister does not have internet. In my opinion, there should be research/treatment facilities in each state to better serve the needs of rural families. My niece’s school is excellent but Tennessee is no place for Autistic children.

  9. Adrienne Morrell
    April 8, 2011 at 1:47 pm

    I am speechless that the survey reflected the “greater New York area” as a good place to live. NYC is one of the absolute worst places to have children on the spectrum. The system is combative and treats you in an adversarial way if you actually need services. After being a full time advocate for my son fighting against the school system, I finally moved to upstate where they provide the appropriate services needed without a fight. My Weill Cornell NYC developmental pediatrician told me that now you have to engage a lawyer right off the bat in NYC if you need services. Maybe the survey is talking about Westchester, Long Island and NJ. NYC — forget about it.

    • ann masotti
      April 9, 2011 at 6:51 am

      I couldn’t agree with Adrienne more…my young adult daughter had been a Spectrum child, misdiagnosed in Westchester County, and socially promoted all through the lower grades in school, despite my constant fighting with the school district. I eventually moved her to a private school. Now, as a young adult there are even fewer services…private or otherwise…where are the social groups they so desperately need to network. Some good parents begin their own clubs. Assistance in colleges is poor. You are right Adrienne, but keep on…never give up. It is an extremely lonely and confused world our kids live in and we have to open it up for them…God Bless You.

  10. Kathleen
    April 8, 2011 at 2:02 pm

    They just posted that Florida was listed low on the list for people who are living with Autism. That can’t be farther from the truth for us in Palm Harbor Fl. There is All childrens Hospital here that has extensive programs and testing. Groups that kids can join and learn social skills as well as many other programs. My son is on Elementary School and soon beginning Middle School. I have found a great school in Tampa that is a magnit school for kids with all levels of Autisum and Aspergers. They can go there from pre K to 22 years of age. There is an organization called ABS advance behavioral specialists that comes to my home, school, and any other meeting that I wish for them to support me in. Insurance covers most of it. The schools here in Palm Harbor are A rated and have Autistic and Aspergers units in the school where the children can go for all exclusive or just some of their classes as per their needs. The teachers have gone above and beyond helping my son in all his grades so far and he is an A student with lots of friends who are not Autistic that ask for play dates and invite him to many functions. He is thriving as best as I could hope for, there will always be challenges but with help that I have here from everyone he will be a very successful young man. I am Very glad I live here in Florida. By the way he is also on the swimm team for the last 3 years and is doing great, we are very Proud of him!

    • Grandma Christine
      April 10, 2011 at 1:02 pm

      Hello Kathleen, where in Tampa is the “magnet” school for ASD? My grandsonFrankie (moderate in the spectrum) is in a separate class for ASD (Pizzo Elementary), but the only school I know of is private and 30k/year!

      • Kathleen
        April 11, 2011 at 11:54 am

        The School is called F.A.C.E Florida Autism Center Of Excellence. Their website is http://www.faceprogram.org It is a public school so it’s Free!They give you really clear instructions on how to get started with them. Just click on getting started on their web page and send them what they need to see if you qualify, they make it really easy. I have also spoken to them a few times on the phone and everyone I spoke to was friendly. If you want to mapquest it it is 6400 E. Chelsea St. Tampa, Fl. 33610
        Hope that helps.

    • Wayne
      July 4, 2011 at 1:41 pm

      Hi Kathleen, I have been considering a move from Washington state to Florida specifically for FACE. Is your child attending FACE or do you have to live in Tampa? I know nothing about Florida communities, neighborhoods, etc.

  11. Sabrina Jondal
    April 8, 2011 at 2:37 pm

    I have found that Norwalk Iowa has a awesome special needs program.Norwalk is 5 miles from the capital of Iowa Des Moines. While my son was there I felt that they were just gonna mainstream him without proper preparations for him to succeed. He is now doing better than we ever thought. My son has Autism and ADHD. His psychiatrist put him on Namenda the alzhiemers medication. His violent behavior is going down. Glad I live in Norwalk Iowa!

  12. Christine
    April 8, 2011 at 3:06 pm

    I think Santa Clarita, Ca is excellent. Our school system has a great autism program which groups children with the same needs and learning levels together. Our Parks and Rec system is also excellent. When you enroll your child with a special need into a class, they supply an aide for your child at no extra cost to your family. How great is that! Our dentist even provides a special exit for kids with Autism who cannot go through the main lobby. Our Sheriff’s department has a program that lets you notify them of children with Autism who wonder off, so that they have all your child’s information at their fingertips in case of an emergency. Way to Go Santa Clarita, CA!

  13. Pam
    April 8, 2011 at 3:25 pm

    Anywhere that doesn’t obviously affect the environment: factories, plants, etc.

  14. cathy
    April 8, 2011 at 5:40 pm

    Lancaster, PA has excellent resources! camps, respite, social skills groups, funding… We are very lucky!

  15. Dan
    April 8, 2011 at 5:43 pm

    We live in Folsom (Sacramento area) and have had great experience, both in school and private services. Sacramento seems to be ground central for autism, with the Mind Institue at UC Davis, the ABC School in Rancho Cordova, horse therapy at the Grace Foundation, and a pretty good parent network. Think the area has attracted families with autism for this very reason, and that tends to build on itself.

  16. Dan
    April 8, 2011 at 5:46 pm

    One more comment – saw Christine’s comment regarding the police force – ours has been awesome when we have had a couple of “escape attempts” – even brought in a bloodhound. Never made us feel bad – just wanted to help. He hasn’t tried this for quite awhile – but now he is in their data base if it happens again.

  17. Stacy
    April 8, 2011 at 8:52 pm

    Wow. I am not suprised that NY was in the top 10. We live in Aquebogue, which is a hamlet of Riverhead (eastern Long Island). When our son needed to be evaluated we hit almost no road blocks. I have to say, the staff at Pupil Services at Riverhead Central School District are amazing. Since our son needed to be 3 before services could begin through the school district, we had his evaluations dones prior to his 3rd bday. Once he turned 3, we had our CPSE meeting and services began immediately. We did not need to fight for help, and I’ve heard some horror stories about parents trying to obtain services for Autism or Special Needs. Our son is in a great program and EVERYONE has been so friendly and helpful. Suffolk County, NY State and Riverhead Central School District gets an A+. Thank you….

    • Kathy B
      April 12, 2011 at 5:46 am

      I have to say that I have heard conflicting information for services in NY. I too reside in Suffolk County and live in the neighboring Longwood School District. My experience has been positive. I really think it is extremely important that the parent is knowledgeable about what services are available to your child and what your child is entitled to. It it then important to do your HW and of course keep an open mind and work with your school district. Keep the thought we are in this together really helps. Just remember, just because your child might be entitled to a particular service, ask yourself – does my child really need that particular service anymore? I am happy with the services here in Suffolk County. Thumbs up for me. Thank you Longwood School District!!!!!

  18. Peaches Shealy
    April 9, 2011 at 12:12 am

    I live in a small town,Chapin, SC. We did not discover that my son was autistic until the age of 20. The resources for his age group are terrible. You would think that with the growing number of cases alone in SC that they would provide better service for autistic adults. As for the school system, I strongly feel that they failed my son. He was always in a special needs class, however it was always looked as ADHD. His IEP is over a 1,000 pages. He repeated the 2nd, 9th,and 10th grade. Finished school at the age of 21 1/2 in the 11th grade. Someone had to have noticed something. I spend thousands of dollars taking him from one doctor to the next only to be told that he has bahavior issues and he will out grow them…

  19. Noelle
    April 9, 2011 at 7:30 am

    We live in Philadelphia and when our grandson was diagnosed at 2 years old we found a wonderful specialist at St. Christopher’s hospital who gave us wonderful recommendations for help and those recommendations lead us to getting early intervention and he has made unbelievable strides. The city provided a special educator, a speech therapist and a occupational therapist who have been coming to the our home 5 days a week for up to 4 hours a day for over a year. He is now ready to transition to the next level of pre-school at the end of this month and he will continue to receive speech and occupationsl therapy and the two days he does not attend school we were granted permission to continue with the special educator 4 hours a week. All of these autism services were provided to us through the city and the level of care is amazing. He is now speaking in sentences, hugging and saying I love you. When he got diagnosed none of us knew how lucky we were to be living in a city that does provide such great autism services. As he enters school at 5 it may become a bit challenging due to all the budget cuts that are happening here..but we shall see.

    • lisa
      October 21, 2011 at 8:18 pm

      my son attends the center for autism free of charge great place if u need more info let me know!! candygirllisa@aol.com

  20. Susan L.
    April 9, 2011 at 7:57 am

    Rhinebeck, New York and (Dutchess County) is the place to live. Having an Autistic Nephew, we found that The Anderson Center for Autism in Staatsburg has the best educational, rehab and living environment for these beautiful and gifted children.

    • Christy Kelly
      April 12, 2011 at 2:32 pm

      Thank you for your statement, “these beautiful and gifted children!” I couldn’t agree more and I am moved by the passion and commitment by the families who have shared their stories on this website. I think this information must be so helpful to families who are looking for the best places to find services.

      Christy Kelly,
      Tucson AZ

  21. Anita Miller
    April 9, 2011 at 8:19 am

    I have a 13 year old boy with high functioning Autism. We have moved from VA to NC and back to VA in search of a school district that is not only equipped but willing to meet his needs. It has been very frustrating and costly. Our last effort was to put him a very expensive private school that made a lot of promises and have fulfilled none of them. The thing I have the hardest time with is the attitude that if he is making C’s he is benefiting from school so they are doing their job. He is capable of A’s with the proper support. They also don’t educate the whole child, social, physical, etc. They are only concerned that he is passing academically. We will be putting him back in public school for fall and pray that the school will do everything they have promised, once again!

    • Kathleen
      April 9, 2011 at 1:17 pm

      I totally agree with you about the comment on making C’s. I know if I wasn’t a pain in the ass with the teachers I feel like they would just be passing my son along through each grade. I have made it Very clear to them that my son is capable of much more and he wll be taught and challenged by them or the will hear from me. Believe me it Works. Every year it starts all over with a new teacher but in a very short period of time they know who I am and they Know my son. Just stay on top of those teachers even though at times it is frustrating be loud and clear what you expect from them…no Demand from them for your sons education and they Will comply trust me. Good Luck :)

  22. Mark
    April 9, 2011 at 8:24 am

    I am sorry not to see Fairfax County, Virginia on this list. They have one of the best public school systems for children with Autism that I have seen. They also have a very dedicated staff within the County for all special needs children through their Therapeutic Recreation Services (TRS) program. I can’t thank them enough for what they have been able to accomplish with my son. I don’t think he would have grown as much if we had moved to Alabama like we had planned. Thank You Fairfax County, Virginia!!!!!

  23. April 9, 2011 at 9:27 am

    new jersey is not a good place for family or cildren with autism , the system is out of money you are on your own , back in the day 1990 if was ok but now to many people , had to fight school system for private school cause they would not let the kids with autism be with the other children and if there are service its very hush, hush , to get them if you have money the programs are out there but if you think jersey is gonna help you no , my son goes to a private school which i love but had to sue the district to get him there and its 45 min from our home but worth the ride to protect him , he is now 21 and there is a waiting list for services and day programs , if i could sell my house i would be out of here !!!

  24. Lynn
    April 9, 2011 at 8:30 pm

    Hi! Lived in NYC with 3 autists and my oldest was in a far too restrictive setting while my younge 2 were in an appropriate setting with good services and afterschool. We also had good home services. Moved to NJ and my oldest is in a much better setting and the younger are ok too. NJ has no support system for caregivers and there are few activities. NY was superior for family support and home based services.

  25. Renee
    April 10, 2011 at 9:15 pm

    Central California is the very worst place I know of for trying to access services for children on the spectrum. We moved here from Berkeley where there is a great wealth of (and sensitivity to) people with special needs. Hoping to get back soon. Central California sucks.

  26. April 11, 2011 at 9:38 pm

    Hello. I live in Montrose,PA and while the people who have been working with my son for the past 9 years they can only do so much. Most of the workers (aside from 1)have done all they could to help me and him. He is now 12 years old and was diagnosed with High Functioning Autism with ADHD. For the first three months there were no services provided due to the fact the offices were based in Clark Summit 30-35 miles from where I live and they could not find a TSS worker willing to travel that far. Over the years he has had about 20 plus workers,at this time he does not have one. Where we live there is currently no respite care and it is IMPOSSIBLE to find a “babysitter” for “Mom” to be able to do anything for herself. It would be nice to be able to go out with my husband and friends for a couple of hours or so. Is a break too much to ask for or am I being selfish?

    • tim h
      April 25, 2011 at 11:26 pm

      we packed up our bags and left susquahanna county pa when autism struck our family… “level of care” is non existent. And the workers are horrible..Binghamton university looked amazing but had a long wait and you are not getting in being a PA resident… Warren NJ (mount horeb school) tops.. and if thats not good enough, the developmental learning center is in town, which takes students from 22 different towns in the area..

  27. David
    April 13, 2011 at 9:59 am

    I live in Westchester County. Where luckliy they have many services. My wife and I were looking for day care for our son when he was two. During a visit one suggested he be examined for Early Intervention services and he qualifed. My school district in lower Westchester has a horrible reputation for not giving services but felt I have been treated fairly with the help of a lawyer. Its been reported that another city in Westchester does not even provide IEP’s. I have heard other districts try mainstreaming first and if it fails will provide all needed services. It is all about the district.

  28. Tonya
    April 16, 2011 at 8:38 am

    I couldn’t agree with Donna, comment #29 more. Woodbridge Township, not the best at all. Some care and most don’t. Let’s save a buck is how I see it. Let’s toss all these kids in one classroom like cattle, try and have a teacher teach them, hey, they fail, ok, let’s pass them to the next grade anyway. Fight and fight to get an aide for your Asperger Child and what do you get, someone who has no clue on how to handle this disability. You have to take what you can get. I’m grateful he has some help after 5 YEARS of complaining about it. So, in my opinion, shame on Woodbrige Township NJ. Where does the money go, in the pockets of the big guys behind the desk. I have two boys on the spectrum and not happy at all. If I could find a better place to go and sell my home too, I’d leave in a heartbeat!

  29. cyndi patterson
    April 18, 2011 at 9:37 pm

    I live in Florence Alabama . I have 2 teenage boys on the spectrum and this is not a good place to live as far as services for my children not a enough doctors in this area this area that know much about autism we have to drive 3-4 hours to go to 3 differnt doctors. and they still do not het the care they should. There is a growing need for something in this area .

  30. July 30, 2011 at 9:22 am

    Very helpful survey. I still wish though that all cities should campaign and work their best to become livable city to special people so as to make them feel they are accepted in all areas. If one or two city have made it, then perhaps all can make it too.

  31. jennifer
    August 27, 2011 at 9:23 pm

    pikeville nc not good over here either in two years time son has gone through 4 schools we have just now this year gotten a good school for kids with aspergers. we have another one for the other children that have autism however it has become over crowded.

  32. August 28, 2011 at 3:35 am

    Well lets see…I have lived in Washington state, Missouri, N.J., Maine and currently in Arizona.
    Washington: no services
    Missouri: or shall I call it MISERY!!! Back woods ignorant…blah blah…u get my point!
    N.J. Really awesome! Lived on the shore in Brick, but EXPENSIVE! We could not afford to live there. The private schools are in a range from, “YOU HAVE GOT TO BE KIDDING”, to “WOW, I GO TO”. The county schools are for cattle…the more elite schools are sweet and they have caring caregivers!
    Orono, Maine was incredible! U of Maine was right there. Small town setting, Lots of kids from the college to help. No home therapy whatsoever. Cold, cold, and wet…my arthritis did not like it.
    Arizona: It was hard at first to prove that my kid really needs the help. The definition of one on one is different from the east coast but they found that my kids really need one on one. I also get hab and respite. The state pays for diapers also. The schools have a program called SPICE. Down side, the freaking HEAT!!!!! Oh my goodness…it is freaking hot! Lots of illegals that are damaging the economy so we have heard that they are going to start downsizing the home therapy
    No matter where you live, you have to fight for what your child needs. Unfortunately, there are some “backwoods” states that do not know their tail end from a hole in the ground!!! Does your research, fight till death once you are there, and pray, pray, pray, pray without seizing!
    I have heard that Wisconsin is really good. Anyone hear about Hawaii??? I have heard it is good…
    I wish they would make a mandate nationwide for services for any child that is affected by the chemicals that is in our food, air, and water. These large companies are making a fortune and we are getting the fall out because of it. I say make em pay through the nose!!!!
    I have 3 boys with autism. My two oldest boys are severely autistic and my oldest does not talk. He hits himself and was making himself throw up all the time. My middle boy hits pretty hard and bites really hard and screams really loud! Finally my youngest boy has Asperger’s, but he has his difficulties. It has been a long road and to top it off, I injured my back…lol done crying so it is time to laugh! My wife hates Arizona so I am on here looking for a different place. Any and all suggestions would be cool.

    • Leslie from West Bloomfield, Michigan
      February 4, 2012 at 10:57 pm

      Come to Michigan. Housing is cheap, jobs are coming around. Oakland County is one of the wealthiest county’s in the country. Most of the school districts in Oakland County have their own Autism Impaired/ASD programs starting from age 3-26. Right now, we are the only state that has state programing up to age 26. I have an 18 year old son with Mild-Moderate symptoms. He has been in the West Bloomfield School District since he was about 15 months old. He is currently in a new post secondary program 1 mile from our house. West Bloomfield has been running an A.I. program for over 20 years. There are a lot of other programs that help out kids like ours, look into the Friendship Circle in West Bloomfield, The Judson Center Royal Oak, The JCC Metro Detroit West Bloomfield has summer camps for kids ages 5ish-20s. The list goes on and on.

  33. Barbara Pons
    August 28, 2011 at 4:32 pm

    East Hartford CT has woodland school. It is for children on the spectrum. They have behaviorist in the classroom. I love the school. If you want to talk just email me. bm1454@att.com. I can give you more detail about the school.

  34. ksriebe070809@yahoo.com
    September 12, 2011 at 12:24 pm

    Wow thank you so much for this survey. We currently live in Las Vegas NV and while our son goes to public school out here for preschool, it is not the best. His teacher and her aides can only do so much but there are about 10 kids in the class and my son is on the mild side of autism/ASD so I feel like he gets pushed aside because of it. He is started to talk more and interact with kids more but I have been to his school and it seems like the kids who are more severe get the most attention. I mean I guess that would make sense but I was told (and I keep getting told this) that my son would be in with kids just like him…on the mild side so they all could get equal amount of attention. He is 4 years old and I really really want him to be able to integrate into regular classess by the time he is in 1st grade but at this rate I am afraid that will never happen…I just wanna cry.

    We have thought about moving to Washington State but I have not heard anything or found anything about the resources there. I know Wisconsin is great when it comes to ASD resources. My husband and I grew up in Ohio so we know what cold is and we have both lived in the south but we are not moving back down south. Can anyone recommend a place where there are resources for mild ASD in either Washington, Oregon and maybe Wisconsin? Other places are greatly appreciated as well. Thanks!!

  35. Nancy
    September 26, 2011 at 10:45 am

    My husband and I have been thinking about moving from
    TX to NJ. We heard that is a good state for kids with Autism. Does anyone know if this is the case with public schools and what’s the best area?

  36. Joanne
    October 26, 2011 at 9:14 pm

    Does anyone know of any places outside of Boston with a good school system? We live in Saugus and it’s horrible!! I have a 3yr old boy with Autism and I am one his 3rd IEP meeting and school just started a month ago!

    • Barbara P
      October 27, 2011 at 10:14 am

      Im sure there is something but they are not going to just offer it to you. I had to keep pushing for something better. i actually started looking at private schools which scared them into finally telling me about a great school program right in my town. Ask them what other schools might be appropriate for you son and ask if you can check them out. Maybe they will tell you but they wont just offer it. Hope this helps!!! You can email me if you want bm1454@att.com Good luck!!

  37. Ann
    December 21, 2011 at 10:33 pm

    Anyone have experience in Fullerton/Orange County, CA for a moderately affected child? Would not likely be mainstreamed but do they automatically place in the nearest autism center?

  38. Lynn
    January 31, 2012 at 12:34 am

    New york city is a huge disappointment. While the in-home services are good, the basement level classrooms and the awful bussing system are horrible. My son actually came home wearing a mouse glue trap on his back. Its really bad here. I’m an optimist and I’m doing my research for the next move. God bless you all!

  39. Sat
    February 14, 2012 at 4:45 pm

    we are thinking of moving to FL ,tampa ,we have 5 year old Autistic son, we currently live in MD , services are good but he often fell sick with the weather in winter mostly he is at home than school. Any adivse which school district is good for Autism kids. He has moderate to Severe autism , he is little verbal so far.

  1. April 1, 2011 at 3:22 pm
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  3. April 1, 2011 at 3:27 pm
  4. April 1, 2011 at 3:27 pm

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